If you ever received a consent form mere hours or minutes before a hospital procedure, you can imagine how confused the mother was when she received a form asking her to agree to let one of her unborn twins participate in Dr. He Jiankui's gene-editing experiment. Relying on information learned from Dr. Michael Deem, his U.S. Ph.D. mentor, Dr. He used the CRISPR-Cas9 technique to disable the gene that enables HIV to enter a cell by attaching itself to a protein.
Medical professionals cannot be expected to write informed consent forms lay people can understand. Communication experts in the countries where forms are used need to choose the best ways to translate modern medical research and procedures and to pilot test forms before they are used.
Since drugs produced in one country are used and sold at different prices throughout the world, they have the potential to be weaponized by overpricing them for, or withholding them from, enemy countries.
Other practices also require attention. Some countries and companies offer financial rewards for stealing intellectual property.
The FBI is investigating Yu Zhou for making millions by forming a company based on a discovery he made while using U.S. government grants and performing research owned by Ohio's National Children;s Hospital while he worked in a lab there for ten years.
In a major example of "ethics dumping," the practice of performing a medical procedure in another country that is banned at home, China's health ministry prevented Italian neurosurgeon, Dr. Sergio Canavero, from attaching the head of a paralyzed patient to the body of a deceased donor in China.
When a doctor suggests a child take a prescribed drug or undergo a procedure, does the child's parent or guardian truly understand the side effects and alternatives? Modern medicine is not only costly; it is complicated. Busy adults often lack time to obtain a second opinion, ask a pharmacist if there is a lower cost generic, analyze internet opinions, or subscribe to and read a newsletter from a medical research center. At the very least, a relationship with a child's doctor and specialists needs to feel comfortable enough to ask questions and follow-up questions to make answers clear. As soon as children are old enough, involve
them in the questioning. They want to know if a needle or the dentist will hurt and how long they will be in the hospital or have to wear a cast or braces.
Teachers, scouting groups, boys and girls clubs, etc. might look for opportunities to assign reports on subjects, such as gene editing, bioethics, using drones to deliver drugs in Africa, hair growth products, vaccines, and vaping. Also, see if the Red Cross, nursing organizations, emergency medical services, local hospitals, or other medical associations have outreach programs that provide speakers and tours.
Students always ask how what they are supposed to learn is relevant. Everywhere in the world learning about health is relevant.
Showing posts with label intellectual property. Show all posts
Showing posts with label intellectual property. Show all posts
Monday, October 7, 2019
Thursday, September 20, 2018
China Feels Winds of Change
Not only has the US President tired of China's theft of intellectual property and lopsided trade balance, but Malaysia's new 93-year-old prime minister, Dr. Mahathir Mohamad, is fed up with loans for Beijing's worldwide Belt and Road Initiative. Labeling China's project "new colonialism," Dr. Mohamad traveled to Beijing to cancel the previous Malaysian government's agreement to finance a rail line and two pipelines for an inflated $20 billion (China may, however, have a way to regain these contracts, if Beijing turns over Jho Low, who was the mastermind of a financial scam in Malaysia). Sierra Leone's new president, Julius Maada Bio, also told China it canceled the previous administration's contract to build a new airport, since the existing one is underutilized.
Despite heavy Chinese spending in support of Abdulla Yameen in the Maldives, the atolls that occupy a key position to monitor trade in the Indian Ocean, Ibrahim Mohamed Solih won a surprise victory in that country's September, 2018 presidential election.
Chinese citizens also were none too happy in September, 2018, when they learned President Xi Jinping, at a meeting of the Forum on China-Africa Cooperation, committed another $60 billion to 53 African countries after committing $60 billion in 2015. Censors quickly removed social media criticism that claimed loans would not be repaid and aid was needed for domestic projects.
China's unabashed interest in Africa's mineral commodities and growing market is arousing dormant European competition. Following his trip to China to inquire about funding for infrastructure projects, President Buhari of Nigeria received visits by French President, Emmanuel Macron, Germany's Chancellor, Angela Merkel, and British prime minister, Theresa May. It was Mrs. May's first trip to former British colonies in five years.
At home, Tiananmen Square did not end demonstrations in China in 1989. Labeled "picking quarrels and causing trouble," "public-order disturbances," strikes by workers in factories and service industries, or just plain incidents, the Communist Party still tries to tamp out what it considers threats to peace and security by arresting demonstrators and those who post social media information about the protests. Despite these government crack downs, protests continue. In 2016, for example, parents of dead children, whose only children were born during the era of China's one-child policy, took to the streets in Beijing. This year, parents protested a local government's decision to transfer children from nearby schools to distant ones. Whether land is seized by local officials, soldiers demand higher pensions, or a minority wants to practice religion, state controls continue to spark tensions.
China fears large movements, such as members with loyalties to international trade union organizations or religions (Muslim, Buddhist, Shinto, or Christian). The government is wary of any large gathering. Security keeps visitors out of Hongya, the Dalai Lama's birthplace in March, when in 1959, a demonstration against Chinese rule in Tibet led to the Dalai Lama's exile and the dissolution of his government there. During the 19th National Congress of the Chinese Communist Party in Beijing, police canceled the Norlha Basketball Invitational tournament in China's Tibetan region. The Public Security Bureau feared the large crowd of spectators the tournament would attract in the Dalai Lama's former domain. (Also see the later posts, "Challenging Chinese New Year" and "Playgrounds Welcome March Basketball.")
Despite heavy Chinese spending in support of Abdulla Yameen in the Maldives, the atolls that occupy a key position to monitor trade in the Indian Ocean, Ibrahim Mohamed Solih won a surprise victory in that country's September, 2018 presidential election.
Chinese citizens also were none too happy in September, 2018, when they learned President Xi Jinping, at a meeting of the Forum on China-Africa Cooperation, committed another $60 billion to 53 African countries after committing $60 billion in 2015. Censors quickly removed social media criticism that claimed loans would not be repaid and aid was needed for domestic projects.
China's unabashed interest in Africa's mineral commodities and growing market is arousing dormant European competition. Following his trip to China to inquire about funding for infrastructure projects, President Buhari of Nigeria received visits by French President, Emmanuel Macron, Germany's Chancellor, Angela Merkel, and British prime minister, Theresa May. It was Mrs. May's first trip to former British colonies in five years.
At home, Tiananmen Square did not end demonstrations in China in 1989. Labeled "picking quarrels and causing trouble," "public-order disturbances," strikes by workers in factories and service industries, or just plain incidents, the Communist Party still tries to tamp out what it considers threats to peace and security by arresting demonstrators and those who post social media information about the protests. Despite these government crack downs, protests continue. In 2016, for example, parents of dead children, whose only children were born during the era of China's one-child policy, took to the streets in Beijing. This year, parents protested a local government's decision to transfer children from nearby schools to distant ones. Whether land is seized by local officials, soldiers demand higher pensions, or a minority wants to practice religion, state controls continue to spark tensions.
China fears large movements, such as members with loyalties to international trade union organizations or religions (Muslim, Buddhist, Shinto, or Christian). The government is wary of any large gathering. Security keeps visitors out of Hongya, the Dalai Lama's birthplace in March, when in 1959, a demonstration against Chinese rule in Tibet led to the Dalai Lama's exile and the dissolution of his government there. During the 19th National Congress of the Chinese Communist Party in Beijing, police canceled the Norlha Basketball Invitational tournament in China's Tibetan region. The Public Security Bureau feared the large crowd of spectators the tournament would attract in the Dalai Lama's former domain. (Also see the later posts, "Challenging Chinese New Year" and "Playgrounds Welcome March Basketball.")
Monday, May 21, 2018
China Beyond the Headlines
Much is made of the contrast between the corruption overlooked in Russia and the crackdown on corruption in China. But other Chinese behaviors and practices deserve examination.
Stealing is rampant in China; the country's prohibition on tax evasion and gambling is evaded; and a form of discrimination is legal. Foreign companies expect their intellectual property rights to be ignored. Chinese companies contracted to manufacture products for foreign firms readily produce knock-offs of those same products. Even exchange students find they have to keep a sharp eye on their belongings or they will disappear. An engineering student from a U.S. Ivy League college, who planned to stay in China for a couple of months, left after a week when her caliper was stolen.
China is not exempt from tax dodgers. There is the revenue a company makes, the amount it reports for tax purposes, and the difference deposited in overseas banks or in Khorgos, an out-of-the-way Central Asian Chinese town on the Kazakhstan border. Along with film studios, media outlets, financial services, and over 14,000 other companies, Chinese movie star, Fan Bingbing, who earned $43 million in 2017, registered her company in Khorgos. Ever since China began a probe into tax evasion on June 3, 2018, Miss Bingbing has not been seen in public, and she has been fined $129 million. Her 62 million followers on social media correctly speculated she was caught in the Communist Party's anti-corruption, tax evasion campaign. She also might be a victim of President Xi Jinping's new morality crackdown on culture and behavior not in line with socialist values.
Gambling is illegal on the Chinese mainland. Beijing stopped approving new gaming apps created by China's Tencent tech leader and pressured Apple to remove gambling apps in its Chinese App Store. But casinos attract Chinese gamblers to Macau, a Special Administrative Region of China, and Chinese travelers freely gamble on overseas trips. "Justify," the winner of the Kentucky Derby, Preakness, and Belmont Stakes is owned by the China Horse Club, as is "Audible," the horse that came in third in the Kentucky Derby. No doubt Chinese handicappers won plenty of cash, when "Justify" won all three legs of the Triple Crown.
Finally, the U.S. State Department's annual report on religious freedom called attention to the million Uighur Muslims China holds in secret re-education camps. In another example of discrimination in China, members of China's poor underclass, unskilled rural transplants earning little in city jobs, find they are victims of the hukou system. They are shut out of health care, housing, and quality educations in state-run schools. They also have been shut out of watching some short-form videos on Douyin, the app Chinese authorities find shallow and addictive and monitor for illegal or morally questionable content contrary to socialist values. Young Chinese viewers say they enjoy watching good-looking amateurs tell jokes, sing, and perform imaginative stunts on Douyin; it's fun and relaxing.
Stealing is rampant in China; the country's prohibition on tax evasion and gambling is evaded; and a form of discrimination is legal. Foreign companies expect their intellectual property rights to be ignored. Chinese companies contracted to manufacture products for foreign firms readily produce knock-offs of those same products. Even exchange students find they have to keep a sharp eye on their belongings or they will disappear. An engineering student from a U.S. Ivy League college, who planned to stay in China for a couple of months, left after a week when her caliper was stolen.
China is not exempt from tax dodgers. There is the revenue a company makes, the amount it reports for tax purposes, and the difference deposited in overseas banks or in Khorgos, an out-of-the-way Central Asian Chinese town on the Kazakhstan border. Along with film studios, media outlets, financial services, and over 14,000 other companies, Chinese movie star, Fan Bingbing, who earned $43 million in 2017, registered her company in Khorgos. Ever since China began a probe into tax evasion on June 3, 2018, Miss Bingbing has not been seen in public, and she has been fined $129 million. Her 62 million followers on social media correctly speculated she was caught in the Communist Party's anti-corruption, tax evasion campaign. She also might be a victim of President Xi Jinping's new morality crackdown on culture and behavior not in line with socialist values.
Gambling is illegal on the Chinese mainland. Beijing stopped approving new gaming apps created by China's Tencent tech leader and pressured Apple to remove gambling apps in its Chinese App Store. But casinos attract Chinese gamblers to Macau, a Special Administrative Region of China, and Chinese travelers freely gamble on overseas trips. "Justify," the winner of the Kentucky Derby, Preakness, and Belmont Stakes is owned by the China Horse Club, as is "Audible," the horse that came in third in the Kentucky Derby. No doubt Chinese handicappers won plenty of cash, when "Justify" won all three legs of the Triple Crown.
Finally, the U.S. State Department's annual report on religious freedom called attention to the million Uighur Muslims China holds in secret re-education camps. In another example of discrimination in China, members of China's poor underclass, unskilled rural transplants earning little in city jobs, find they are victims of the hukou system. They are shut out of health care, housing, and quality educations in state-run schools. They also have been shut out of watching some short-form videos on Douyin, the app Chinese authorities find shallow and addictive and monitor for illegal or morally questionable content contrary to socialist values. Young Chinese viewers say they enjoy watching good-looking amateurs tell jokes, sing, and perform imaginative stunts on Douyin; it's fun and relaxing.
(Also see the earlier posts,"China's Plan for World Domination" and "China Stretches a Napoleon-Style Belt.")
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